tag:blogger.com,1999:blog-9001212476172743525.post3507560984125361740..comments2023-07-28T23:58:34.869-10:00Comments on Notes on the Journey: Dysautonomia AwarenessPattihttp://www.blogger.com/profile/03414949567371622229noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-9001212476172743525.post-82022788683410777612013-01-01T18:15:43.671-10:002013-01-01T18:15:43.671-10:00Thanks for posting here. I'm sorry you have NC...Thanks for posting here. I'm sorry you have NCS, along with CFS/ME. That's a lot to deal with! I also start my day with salt water. I've found that if I drink it right before I exercise, I can actually walk for 30 minutes without ruining the next 2 days. This is major progress for me! <br /><br />Fainting has got to be hard to deal with because you have no control where you fall. Scary stuff. Stay vigilant & take care of yourself!<br /><br />I hope you enjoy Renée's class. I love scrapping on my iPad! One of my favorite layouts of the year was made for the class. <br /><br />I didn't actually teach a class, I just posted a tutorials on my blog. I'm hoping Renée will do a class on Art Studio. She definitely expressed interest when I told her about what I was doing with it. <br /><br />Happy New Year!Pattihttps://www.blogger.com/profile/03414949567371622229noreply@blogger.comtag:blogger.com,1999:blog-9001212476172743525.post-76691940604121082222013-01-01T16:34:52.326-10:002013-01-01T16:34:52.326-10:00Hi Patti,
I just came across your blog because I ...Hi Patti,<br /><br />I just came across your blog because I signed up for the class of Renee Parson, IScrap. I was reading the forums were you posted a link to your blog and while browsing I came across this post. <br />Just wanted to let you know that I have Dysautomnia as well, I have the NCS variety, the NeuroCardioGenic Syncope. So I do faint and hate it. I have injured myself so many times because you have no idea when it will happen. For me it also happens when I turn my head, when I sit down in the car, I faint in bed while turning from on side to the other and while standing upright for too long. The last time I was out by myself is 6 years ago. I was waiting for the light to cross the street and I fainted, right before a big bus was rounding the corner. I was very lucky he drove slowly and did see me wobbling. <br />After that I could no longer drive or go out by myself. But not just outdoors these things happen, also indoors. I fainted in the garage and hurt my legs on a rake, in the bathroom fell with my nose hitting the porcelain toilet seat etc. Unfortunately no medication helps me, I just stay hydrated as much as possible and start my day with a glass of salt water.<br />The NCS is a symptom of my ME myalgic Enchephalomyelitis also connected in the USA as CFS/ME ME is the neurological component. It causes inflammation in the spinal cord and brain. Lots of people with ME/CFS have POTS or Orthostatic Intolerance. Especially the PEM, post external exercise, what you mentioned is telling for a diagnose of CFS.<br /><br />I'm so glad in not the only one with this problem, unfortunately your class is finished I would have loved to connect with you. None of my ME friends is interested in what you can do with an iPad other than games and FB. I'm going to read your tutorial now and can't wait to try it out,<br />Wishing you a healthy, artistic and happy 2013!Tinkhttps://www.blogger.com/profile/16951231576228161688noreply@blogger.com